0:00:00i lessons not a lot's with carousel
0:00:03or i one is
0:00:04i've been reese recognized as a group in a native attention
0:00:10a why the diagnosed with cancer in greater numbers and i younger children
0:00:15and yet they experience pour survival outcome
0:00:19higher rates of treatment on it here
0:00:21and a poor quality of life even years after being successfully cured of ten
0:00:28i cancer diagnosis and i y is also collides with an already complex like stage
0:00:34i don't the timing of psychological vulnerability
0:00:39with all these complexities it is crucial the research continues to focus on better ways
0:00:45to assess
0:00:46and marriage young peoples to stress
0:00:50throughout the cancer experience
0:00:53unfortunately there are no more barriers to gold standard psychological research in this group
0:01:02one that is the lack of agreed upon meshes of psychological outcomes
0:01:07that have been validated be used in this age group
0:01:12such standardised validated outcome measures that crucial the field as a whole to advance in
0:01:18our understanding or unnatural and severity of the stressed that young people with cancer experience
0:01:26in addition our ability to create affected psychologically interventions depends much on our ability to
0:01:34first
0:01:35the to stress
0:01:37to myself entertainment colleagues from thank you can also sent out that sydney children's hospital
0:01:45can't in australia
0:01:46and the university of new south wales
0:01:49conducted a systematic review of psychological outcome measures that be validated for use among adolescents
0:01:56and young adults with can sell
0:02:00we set the literature from the past thirty years
0:02:03looking not only measures of distress
0:02:06but also or more adaptive outcomes such as resilient
0:02:11benefit finding and mindfulness based skills
0:02:15interestingly from of four hundred published papers
0:02:19we were able to identify seven a dimensions that have been validated for use among
0:02:25a way we can sell
0:02:28we located twenty more mentions that sure promise to be used to model a wise
0:02:33contents are in the future
0:02:36in addition the mix and match is that we define was specially well balanced
0:02:42most of these measures quality of live
0:02:45at the same time we found no validated measures a way that is that depression
0:02:51anxiety post traumatic stress
0:02:55fear of cancer recurrence
0:02:57sense of identity
0:02:59mindfulness based skills
0:03:01sorry
0:03:02what is the main in practice
0:03:05the lack of agreed upon validated measures psychological outcomes
0:03:10means that currently researchers the measuring and defining distressed an adjustment in very different ways
0:03:19this makes it difficult for the field to achieve a consensus on questions like
0:03:24what you need needs of young people with had a
0:03:28what types of distress the most prevalent
0:03:32our current support and intervention strategies actually making a difference
0:03:37for the clinician working with young people with cats are annotated a basis
0:03:43this main that's an h specific facets to stress or adjustment i just not picked
0:03:49up by the scales that are currently available
0:03:53review we explore the number of n portion features directions that the field of a
0:03:58wise fact one colleges the whole
0:04:02if you our research on a clinician
0:04:05or anyone else with an interest in the psychological outcome the young people with can
0:04:10sell
0:04:11we try to rate this review and be part of this important conversation